The Clothes Make the Man

My wife joined a band last year that plays regularly at different restaurants and venues in our area. My son and I try to go to every show, taking in a set or two as we have dinner together and watch our matriarch do what she loves to do and does so well.

A few weeks ago, I was waiting for my son to finish getting ready so we could go to a gig. I was wearing a T-shirt with her band’s name and jeans. My son came around the corner sporting blue jeans, a black on-brand Marvel shirt, and a bright red blazer on a hanger over his shoulder.

“Nice,” I said as we headed to the car.

After we parked, my son stepped out of the car and pulled his jacket from the hanger over the back seat. He slid each arm in turn into the coat and buttoned a single button below his chest, and we headed in.

When we entered the venue, my wife saw her tall, handsome son sporting a bright red blazer. She came over, gave him a big hug, and told him how good he looked. She brought him to the stage, and I played paparazzi, taking pictures of the dapper gentleman and the singing star.

We made the rounds to greet the band, and each of them commented on how tall my son was and how sharp he looked in his jacket. At our table, the waitress also mentioned his blazer, and I could see him carrying himself more confidently and maturely. Sitting across from me, he looked five years older.

The clothes make the man.

“Man.”

It’s such a loaded word. He’s the size of a man and wears men’s clothes, but inside, he’s still the same boy who, for many years, would go to every doctor’s appointment in pajamas or a costume. I watched his face as he sat at the table obsessively struggling with a Rubik’s Cube. His brain wouldn’t let him stop, but it wouldn’t help him remember or apply the techniques to solve it.

The gap between his outward appearance and his internal workings continues to widen, as does the gap between his development and that of his peers. These gaps are getting harder to reconcile, and they stoke my fear of him being misunderstood by the outside world. I try my best to push those fears away as he looks up at me. I smile, and we talk about his strategy to solve the puzzle and listen to my wife’s voice fill the restaurant.

After dinner and between sets, we said goodbye to my wife. She again commented on how good my son looked in his jacket, and I saw him stand a little taller. He carried that height from my wife’s table and the door, growing even more as a handful of random patrons also commented on how good he looked in his red blazer.

“I feel like a celebrity,” he said as we stepped through the door. In addition to his bright red blazer, he wore a priceless, confident smile.

As we walked to the car, I couldn’t help but marvel at how much that red blazer seemed to transform him—not just in how others saw him, but in how he saw himself. For a few hours, he wasn’t the boy with special needs or the countless doctor’s appointments. He was the tall, confident young man turning heads and making impressions.

While I know the gaps will always be there, that jacket gave him a taste of a world where he could be seen without his struggles, even if only for a little while.

On the Other Side of the Door

I could feel the tension and energy seeping under the door. I could hear the curse words through the door, some directed at the situation and others at me. I could hear pencils and books being pushed off the desk and onto the floor.

Moments before, I was on the other side of the door nudging my son to stay on task and finish his chores and homework. He had been home for about an hour and still hadn’t finished cleaning his room or completing his homework.

I pointed out the clothes, toys, and trash scattered across the floor. I showed him the overflowing trash and collection of empty soda cans that he had hidden behind the dresser in his closet and his yellow homework folder sat unopened on the edge of his desk.

It wasn’t the first time I checked in on him, and his sigh of frustration got louder each time. He would stand up and begin to clean as I left the room, only for me to return with no discernable difference in its cleanliness.

After the third time, he snapped. He sat on the edge of his bed, and every answer to my questions about his thoughts and feelings included an appropriately placed curse word.

“$*!&#! homework.”

“$*!&#! chores.”

I wanted him to have his feelings, but I knew he wasn’t in a place where he could hear me or talk about them. So, I used my years of therapy to acknowledge his anger and frustration. I offered a few pieces of advice to help him navigate and source his anger, and then I told him to come and find me if he needed help or when he was ready to talk.

That’s when I found myself on the other side of the door, listening to his sounds of anger.

Leaving the situation is often the hardest thing to do. I desperately wanted to make him feel better…to say the right thing to make his anger disappear. But I’ve learned (again, thanks to years of therapy after countless examples of trying to solve everyone else’s feelings) that it’s not how it works. I’ve also learned that staying in the situation and taking the anger, frustration, and attacks is not required in any relationship. It doesn’t serve me, and it establishes and persists a toxic pattern of behavior that will strain or ruin a relationship.

There are times when it is necessary to stay in the room, particularly if there is a fear of harm. We went through that a lot when our son was younger, especially after we got him out of status and went through the myriad of side effects from medications like Keppra. There was little regulation, little impulse control, and a lot of anger. Oftentimes, we would have to sit with him, hold him, and take his rage until it passed.

We have worked hard to get here individually and as a family. The skills we have learned allowed us to identify and process our feelings and to understand and maintain a sense of love, trust, and respect. They allowed me to leave the room.

Ultimately, the most challenging but essential lesson is this: I can’t fix every moment of anger, frustration, or struggle my son faces. What I can do is create a safe space for him to process those feelings, knowing that I’m always there on the other side of the door.

It’s not about being perfect or having all the answers—it’s about showing up, staying connected, and trusting the work we’ve done as a family to guide us through. Healing isn’t linear, and neither is parenting, but each moment like this reminds me of how far we’ve come and how much strength and love we’ve built together.

The Perfect Storm

My wife pulled up a picture of me from a year ago on her phone. At least, I think it was me. The face in the picture had the same thinning hair and the same gray beard, except it was wrapped around a much rounder face. I recognized the shirt that person was wearing because I had the same one hanging in my closet, but it fit much tighter on that person than it did on me.

Maybe it was the angle, or maybe the picture was altered—people can do all kinds of things with AI these days. Either way, I was suspicious of the image’s authenticity because I was blessed with a fast metabolism. I was the same weight for most of my youth and a consistent, slightly heavier weight for most of my adult life. It didn’t matter how much I worked out or what I ate.

“When you’re 25 it will change…”

“When you’re 40 it will change…”

But it didn’t change. Even if my routines or diet did, everything averaged out to keep me exactly where I was. As I said, I was blessed.

But then I remembered that, around the time that picture was taken, I had my first physical since the pandemic. As I stood on the scale, the number that appeared was much bigger than I had expected. The lab work that came back also showed markers that led my doctor to discuss medication to treat high blood sugar and cholesterol.

Maybe that was me in that picture, after all.

Do you remember the movie The Perfect Storm with George Clooney and Mark Wahlberg? It’s about these fishermen who get caught at sea when a trio of storms merge into, well, a perfect storm.

That’s what happened to me during the pandemic. The combination of the world shutting down and limited access to my regular physical activity, the stress and unhealthy eating choices that came with it, and the increased fear, anxiety, and depression from extreme isolation and watching my son deteriorate physically and emotionally combined into a storm that consumed me.

Even after we moved out of the city and the world began to open up, I couldn’t find my way out of it. Even after we found a school for our son and he began to improve, I couldn’t find the motivation to change. The storm had knocked out my engines, and I was drifting at sea.

My physical exam results were like the light from a lighthouse far in the distance. I was drifting, and they warned me of the rocky shore ahead. I had to decide whether to continue to drift in that direction or try to fix my engine. Like the fisherman at sea, I thought about my family, who depended on me. I thought about the adventures we’ve had and the ones ahead of us.

I picked up a book by Peter Attia called Outlive that discussed longevity and living better longer—not just living longer but living the life you want in the future. I don’t want to be 80 and sedentary. I want to travel with my family and be able to put my luggage in the overhead compartment on a plane. I want to play basketball with my son, play tennis with my friends, and go on long walks with my wife and the dogs.

According to the book’s philosophy, I had to consider my future and work backward to the present to prepare for the life I wanted. That meant changing my ways that led to the person I saw in that picture and who stood on the scale in the doctor’s office. If I wanted to continue to be there for my son and family, I needed to fix my engine.

The timing of this post wasn’t intentional, but it is serendipitous. As we begin a new year, it’s a natural time to reflect on where we are and where we want to go. The world and our lives are stressful enough, and being parents of children with special needs adds another layer of complexity and challenge that often leads to exhaustion, feeling overwhelmed, and depression.

The decision to change—even in small ways—can set us on a better path. Whether it’s prioritizing your health, finding balance, or being more present for your loved ones, the first step is recognizing the need for change and believing it’s possible.

Here’s to a year of growth, resilience, and renewed purpose.