Category: epilepsy

Shaped By Our Suffering

When we lived in Colorado, I would see trees on the edge of cliffs as we drove through the mountains. The wind and weather at that elevation could be brutal. But these trees would grow thick roots to ground themselves into the earth, even as their trunk and branches were bent and battered and grew angled towards the sky to withstand the constant pressure from the wind.

I recently came across the phrase “shaped by our suffering,” which speaks to how difficult experiences can shape a person’s character, perspective, or life path. While painful and often unwanted, the idea is that suffering can lead to personal growth, resilience, and a deeper understanding of life.

For as long as my son can remember, he has had challenges. He has had seizures, memory, attention, and learning difficulties. He was isolated even before the pandemic and, even now, is often on the outside of many social situations. He had so many dreams taken away from him before he could try to achieve them.

Through it all, though, his challenges and struggles shaped him into a sweet, empathetic, resilient, and big-hearted person. Those are his roots, which ground him as a person and to this family and keep him from getting blown away by what he endures every day to be in the world.

His struggles have also shaped me, forcing me to reflect on myself, my life, and my choices and develop a greater self-awareness. The months in the hospital while the doctors, nurses, and support staff kept him alive and rebuilt what he had lost changed my view on life, gratitude, and presence. The strength and grace he shows daily in the face of his challenges guide how I think about and approach challenges in my day.

The hardship we endured as a family, which tried to tear us apart, formed deeper, stronger connections between my wife and me and in our family. Today, those roots continue to strengthen, ground us, and make us more resilient against whatever comes our way.

Like the trees I saw in Colorado, we are shaped by the winds of our struggles. The storms we face may bend and scar us, but they also deepen our roots, making us more resilient and grounded in the things that truly matter. My son’s suffering has shaped him into a remarkable person with an incredible capacity for empathy, strength, and love. It’s taught me to live with more gratitude, to be more present, and to face my challenges with the same strength as my son.

The hardships we endure don’t define us, but they shape us—and sometimes, they make us stronger than we ever imagined possible.

All the Feels

Well, that happened.

I hoped we were better. I hoped we could be compassionate and selfless enough to think beyond the issues that impact us individually and vote for the issues that affect our country. I hoped we could see past the tactics of anger and fear that have polarized us against each other. I hoped that the close-minded view that the country was meant only for people who looked, spoke, and prayed like us would bend to consider the segments of the population at risk of losing their rights and identity.

But the results spoke for all of us. Unlike the last election, there were no claims of a stolen election. There is no debate that the Electoral College doesn’t represent what the country believes like the popular vote does because, this year, they both overwhelmingly showed what our country has become.

The past week has been filled with armchair analysis and retroactive criticism about what went wrong for the Democratic Party. Each clip tries to encapsulate a soundbite to explain the rationally irrational human brain, often contradicting another clip that uses the opposite justification.

I’m not sure we will ever know the answer. It certainly won’t change what is about to happen. But I think people want change but don’t want to change. We don’t seek information that could change us because our minds and hearts are not open to change, and we bury ourselves deep into echo chambers that reaffirm our righteousness.

What I do know is that this week, I felt all the feels. As a husband, the father of a special needs child, the godfather of a teenage girl, a veteran, and a friend of beautiful humans from different countries with different beliefs and identities, I was shocked by the result, angry at who we have become, and afraid of what the world will look like for the people who I care about in the next few years and for my son when he grows up.

We may not recognize it because we’re so caught up in our feelings, but our kids have a lot of feelings about this, too. They see what is happening and hear our conversations even if they don’t understand the details. They’re trying to make sense of what is happening, too, and if we can’t do it, how can we expect them to do it?

What we can do is help them with their feelings. We can encourage them to say their feelings out loud and to ask for help when their feelings are confusing or too big. We can demonstrate this behavior by sharing our feelings with them in an age-appropriate way. We can be present, listen, and demonstrate sympathy and empathy for them and everyone who needs it now more than ever.

Last year, my wife published a children’s book called “And” about feelings and the permission to feel multiple, conflicting feelings all at once. We use AND a lot in our house, as do our friends and readers. I think it’s such an important message, especially in these challenging times, and especially for our children, that we’re offering a 50% discount on the book to share the message and help as many children and families as possible.

To claim the discount, visit our store and use the code “ALLTHEFEELS2024” for 50% off through November 2024 when you order directly from kettlepot press.

kerri monnerat and social emotional childrens book

Take care of yourself and your family. And let’s take care of each other.

Vote. Vote. Vote.

Today is Election Day.

Step 1: Do your research. What the candidates say is not research. Fox News is not research. Joe Rogan is not research. Research involves facts and data, not speculation and unsubstantiated claims masked as questions to uncover the “actual truth,” because it never does.

Step 2: Question what you read. Don’t just stop at the headline. Ask, “Why?” Ask, “Is this really true?” And follow up. It was discovered a few days after a video surfaced that claims of an immigrant voting multiple times were fake. It was debunked that immigrants were eating pets. Extreme headlines and claims are designed to evoke anger and fear. It’s easy to get riled up by fear and anger. That’s why they’re doing it…because it works.

Step 3: Use critical thinking. This is a lost skill, but if we try hard enough and are open to the possibility that not everything we hear can be true, we can do it. It’s clear when there is a lack of critical thinking. There is no critical thinking when there is no listening. There is no critical thinking when responses to questioning claims are met by more rhetoric, more unsubstantiated claims, and more taglines. There is no critical thinking when being presented with facts triggers personal attacks or short circuits the brain.

Step 4: Vote.

This election is too important. Too much hangs in the balance for women, minorities, immigrants, children, healthcare, and the future of our country. If you can’t see that, are too caught up in anger and fear, or think that a fascist authoritarian cares about you and will do anything for you that doesn’t benefit him, you skipped one or more steps and should go back to step 1.