Category: lifestyle

  • The Water Level: Disability and Technology

    The Water Level: Disability and Technology

    When driving comes up, I tense.

    It doesn’t happen every time, but when we’re with other families and someone mentions permits or practice drives or the freedom of having a new driver in the house, something tightens in me. I watch my son. He doesn’t say anything. He just goes quiet and waits for the conversation to move somewhere else. I usually help it along.

    I don’t know exactly what he’s thinking in those moments. I don’t ask. Maybe it’s nothing. Maybe it’s everything. But I was in that exam room when his neurologist answered his question about driving, and I know what “probably not” sounds like when it lands.

    His friends are getting permits. He’s watching that happen from the outside, the way he watches a lot of things.

    I think about his future more than I let on to him. I think about medications they haven’t discovered yet. Therapies. Devices. I think about his independence — what it might look like, what it might require. Autonomous vehicles have been part of that thought for a while. Not as a certainty, just as a possibility worth holding onto. So when I came across a podcast recently about autonomous vehicles and what they might mean for people who can’t drive, I expected something that confirmed what I’d been quietly hoping. Instead it pulled in two directions at once.

    The first part was about job displacement — the ways AI is already eliminating work, particularly at the lower end. Automation moving through the kinds of jobs that don’t require a degree or specialized training. The ones with structure and repetition. Then the second half shifted to autonomous vehicles and the disabled community. The argument was straightforward: people who can’t drive because of a medical condition, a physical limitation, age — autonomous vehicles could give them something they don’t currently have. Independence. The ability to get somewhere on their own.

    And then someone in the episode pointed out that the disabled community was being used to make the case for technology that primarily serves other interests. That the promise of accessibility was real but also convenient. I don’t know where the truth lands on that. Probably somewhere uncomfortable.

    My son is sixteen. He wants to be a hockey player or a streamer. Neither is straightforward. Hockey as a player isn’t realistic, though being involved in the sport in some other way might be possible someday. Streaming is something he genuinely enjoys, but it requires consistency, memory, sequencing — things that are hard for him right now, harder than they look from the outside. He has dreams the way any teenager has dreams. He just has more walls. And the jobs most likely to be within reach for him — the ones with structure, repetition, and the right support in place — are the same ones that automation is already eliminating.

    I’ve worked in AI for more than a decade. I use it every day. The work it’s making easier is white collar work — the kind that requires education, executive function, the ability to synthesize and decide. The jobs it’s eliminating are the ones that could work for him.

    The water level keeps rising. He’s already underwater.

    That’s the part I can’t think my way out of. Autonomous vehicles might eventually give him a way to get to a job on his own. That would matter. That would be real. But if the job itself has been replaced by the time the technology arrives, the independence doesn’t have anywhere to go.

    I don’t know how to hold both of those things. I’m not sure I’m supposed to yet.

    What I keep coming back to is that exam room. His neurologist exhaled before she answered. My son sat there and took it without flinching. Part of him probably already knew. Part of him was hoping for a different answer.

    He’s been doing that his whole life — absorbing the gap between what other kids have and what’s available to him. Sitting quietly while the conversation moves on. Waiting.

    I don’t know what the world looks like when he’s thirty. I don’t know which promises will have been kept and which ones will have turned out to be convenient. I don’t know if the door that technology seems to be opening will still be open, or what will be on the other side of it if it is.

    I just know he’s sitting with questions he shouldn’t have to sit with at sixteen.

    And I know what it looks like when he goes quiet.


    I also wrote about this topic from a different angle on davidmonnerat.com, where I explore the structural side of the question — who technology is built for, who it displaces, and why those two groups are often the same people. You can read that piece here: The Other Hand: AI, Disability, and the Cost of Progress.

  • A Step Back From the Edge

    A Step Back From the Edge

    I used to feel like I was already over the edge.

    Not standing near it. Not testing it. Over it.

    There were stretches where it felt like I was constantly catching myself mid-fall. Managing medications. Managing schedules. Managing finances. And at the same time, bracing for volatility. Wondering what I was walking into at the end of the day — whether it would be a call from school, a number on a bill, or a silence that meant something had already shifted.

    It wasn’t dramatic in the moment. It was just normal. That’s what makes it harder to recognize in hindsight. I was in freefall and calling it responsibility.

    My son still had seizures. My goddaughter still struggled. Work still pressed. But layered over all of it was instability. The kind that keeps your nervous system activated even when nothing specific is happening. The kind that makes you feel like collapse is always a few inches away.

    I hate heights.

    If I look over the side of a building, my body reacts before my mind does. There’s a queasy suspension. A sense that gravity is closer than it should be. That feeling used to live in my chest most days. Not because catastrophe was constant, but because it was always possible.

    The edge is still there.

    My son still has seizures. A cold still increases risk. My goddaughter is still medically fragile. Work is still work. The debt is still heavy.

    But I’m not over it anymore.

    I’m a step or two back.

    I can see the drop. I don’t like it. I don’t pretend it isn’t there. But I’m standing on solid ground. The weight I’m carrying feels steadier. It doesn’t swing the way it used to.

    That’s the difference.

    The risk hasn’t vanished. The responsibility hasn’t lessened. The uncertainty hasn’t resolved.

    What’s changed is the footing.

    I’m not bracing for the next shove. I’m not scanning every moment for signs of collapse. I’m not ending each day with the sense that I barely made it through.

    I’m standing.

    Close enough to respect the edge. Far enough back to move deliberately.

    The edge isn’t gone.

    But I’m not falling anymore.

  • No Extra

    No Extra

    There’s no extra right now.

    Not extra money. Not extra time. Not extra energy. The margins are narrow. The system runs because it has to.

    Sunday mornings are for medication.

    I make coffee. I put on a podcast or an audiobook. I stand at the kitchen island and start with mine. A few supplements come out first so they can go into my son’s pills later. Mine go straight into the organizer. His get laid out on a paper towel, seven days in a row, then transferred into the plastic containers. When they’re finished, Sunday goes on top.

    I take my pills. I set both containers on top of the coffee machine for when he wakes up. The dogs are usually on the couch, half-watching. They know the routine.

    Every morning I swap the containers. I take mine. I put them back. It’s mechanical. Quiet. Just part of the structure.

    Everything goes in the calendar now. Appointments. School events. Guitar lessons. Therapy. Tennis. If it isn’t there, it doesn’t exist. The to-do list is long, but it turns over. Things come off. New things go on. Nothing flashy, but nothing slipping.

    The house is tidy. The clothes are clean. The dogs get walked, even when it’s freezing. They get groomed. My son and I get haircuts regularly. It might look like a small luxury from the outside, but it feels more like maintenance. A way of saying we’re still taking care of what’s ours.

    There’s no extra, but there’s enough.

    We’re not adding new things. Guitar and tennis stay for now, but they’re the first to go if something else demands attention. I don’t feel deprived. What we have feels deliberate. Contained.

    The debt is heavy. The future has large shapes in it. I want clarity. I want the numbers to go down. I want more margin. But the day-to-day isn’t falling apart.

    That’s new.

    Control feels quiet. It isn’t about power. It’s about not bracing. It’s about knowing that if something goes wrong, it’s a problem to solve.

    I’ve been doing this job longer than the title suggests. Now there’s no one else to absorb it. Income. Meds. Schedules. Appointments. A cold this weekend. Likely more seizures. That’s just the math. I’ll adjust. I’ll keep going.

    The system holds.

    It isn’t elegant. It isn’t abundant. But it’s ordered. Maintained.

    There’s no extra right now.

    There’s what must get done. There’s what keeps us steady.

    For now, that’s enough.

  • The Long Middle

    The Long Middle

    The old version of me would still call this a crisis.

    There was a time when this much responsibility, this much uncertainty, this many variables would have felt like an emergency. Therapy, time, and experience have changed that. I don’t react the same way anymore. I don’t spiral at every shift.

    But that doesn’t mean it feels light.

    Everything is on me now. Income. Care. Medications. Schedules. Appointments. If my son catches a cold, I already know what that usually means. Colds often mean more seizures. That’s just a fact. I can’t change it. I won’t panic when it happens. I won’t treat it like a catastrophe.

    But I still have to carry it.

    The structure of my day hasn’t changed much. That’s part of what makes this the middle. Morning follows night. Work follows the morning routine and school drop-off. Pickup follows work. Dinner follows pickup. Bedtime follows dinner. Then it starts again.

    Each segment feels like a middle. The morning is between the night and the workday. The workday is between drop-off and pickup. The evening is between dinner and sleep. It’s like a loop that keeps folding back on itself. Nothing climactic. Nothing final. Just continuation.

    The worst version of events hasn’t come to pass.

    The things I used to brace for haven’t arrived.

    But nothing has resolved either.

    There are still things in motion. Still decisions that aren’t finished. Still outcomes I can’t control yet. I can see that an official “new life” is approaching, but even that feels like another middle. I’m not there yet. I’m here.

    Here looks like waking up, working out, showering, making breakfast, and packing lunches. It looks like responding to seizures while my son sleeps in late, postictal. It looks like getting him ready for school, dropping him off, going to work, leaving early to pick him up, and finishing work at home. Walking the dogs. Chores. Hoping for a game of Fortnite together before dinner. Cleanup. Bedtime routine. Repeat.

    It’s not dramatic. It’s not cinematic. It’s routine.

    And maybe that’s what the long middle really is.

    Not the beginning. Not the breakthrough. Not the clean ending. Just the steady stretch where responsibility becomes ordinary. Where weight doesn’t disappear, but it becomes familiar enough that you stop naming it every hour.

    The house is quieter now. Less chaotic. There’s space where noise used to be. That space isn’t exactly peaceful, but it isn’t volatile either. It just is.

    I don’t know what the future version of this life will look like. I know there are changes coming. I know certain realities are solidifying. But today is not about that.

    Today is about the loop. About carrying what needs carrying. About not treating endurance like emergency.

    The long middle isn’t dramatic.

    It’s repetitive. It’s responsible. It’s unfinished.

    And for now, it’s just the way it is.

  • A Place Where Awareness Ends

    A Place Where Awareness Ends

    I was making lunch for my son and went into the pantry to grab the bag of cheese puffs. It was the big bag, the one we keep on the top shelf. He had some as a snack after school the day before.

    The bag was wide open.

    It was sitting exactly where it always sits, but unfolded, unsealed, left the way it was when he last touched it.

    He knows to fold the bag over. We’ve talked about using a chip clip to keep it closed. I suspect he remembered that he needed one, looked for it, didn’t see it in the basket where they usually are—probably because something was in front of them—and stopped there. He’s not great at moving things out of the way to see if what he’s looking for is behind them. And instead of asking for help, he put the bag back on the shelf and walked away.

    This happens a lot.

    The cereal bag left open on the counter. A piece of recycling placed on top of the bin instead of inside it. A dish in the sink instead of the dishwasher. His lunchbox still holding an apple core or a wrapper from earlier that day.

    It can feel like I’m following his tracks through the house, noticing the small places where things were almost finished. Little markers of effort that ran out just before the end.

    I don’t get mad when I find the bag open again. I recognize it as a place where his awareness ended that day.

    I offer gentle reminders. Sometimes they stick for a while. Sometimes they fade, and weeks later I find the cereal bag open again on the top shelf. Not because he doesn’t care. Not because he’s being careless. But because holding all the steps—seeing the problem, finding the tool, moving obstacles, finishing the task—can be more than his brain can manage in that moment.

    This is what a lot of caregiving looks like.

    Not emergencies. Not hospital rooms. Not big, dramatic moments. Just quiet maintenance. Picking up what was left behind. Closing the loops that didn’t quite get closed. Learning to read these small, unfinished things not as failures, but as information.

    They tell me where his energy ran out. Where his attention drifted. Where the world became just a little too much to hold all at once.

    So I fold the bag. I clip it shut. I rinse the lunchbox. I don’t sigh. I don’t lecture. I just keep walking behind him, filling in the gaps.

    This is part of how I love him.