epilepsy dad

Category: lifestyle

  • Holding On to Moments That Last

    Holding On to Moments That Last

    A few weeks ago, I took my son to the airport. It was the first time he was going on a trip without me. And not just without me, he was traveling for the first time as an unaccompanied minor.

    He was growing increasingly nervous leading up to his trip, and each day, his anxiety showed more on his face. I woke him up early that morning to give us plenty of time to check in and get my gate pass, which added a slow, sleepy haze to his nervousness.

    We passed through security and headed towards the gate. I checked his boarding pass and looked at the signage. We were two terminals away and the gate was the second to last in the terminal, which meant we had a hike in front of us.

    I led the way as he trailed behind me, his loaded backpack hanging over his shoulder, adding weight to his burden. I offered to carry it for him, but he declined. His face was blank, his mouth slightly open, drawing in air, as we pushed forward until we entered the terminal for his gate.

    “I’m so hungry,” he moaned.

    “Ok, pal, we’ll find something closer to the gate.”

    We pressed on through a largely empty terminal, the stores and eateries closed. He reminded me every few minutes of how tired and hungry he was, in case I forgot. I said a little prayer that there would be a place for him to get food and that he would have enough time to get it near his gate. Fortunately, there was a food court with a Sbarro within view of the gate.

    He slumped into a chair, dropping his bag off his shoulder, as I went to order him food. I glanced over, and he had the same exhausted, blank expression on his face. I brought him a slice of pepperoni pizza and a glass of water, placing them in front of him.

    After it cooled, he hunched over and took a few bites.

    “I’m too tired to eat.”

    “Ok, pal.”

    I packed up his food and picked up his backpack.

    “Let’s get you to the gate,” I offered.

    He stood up slowly and followed me the rest of the way.

    His flight was already boarding, so I went to the desk to let them know he was there. We stood off to the side as they finished boarding, which is when there was enough of a pause for me to start missing him, even before he left my sight.

    I thought about the previous day. When I dropped him off to school, he asked me if I would play basketball after I picked him up.

    “Maybe,” I said. I knew I had a big day at work ahead of me, and I didn’t want to commit and then disappoint him if I was too busy or tired.

    And I was. But the first thing he said to me when he stepped into the car was to ask about playing basketball. Every exhausted fiber of me wanted to say ‘no,’ but I knew I’d miss him terribly and wanted to spend every minute with him.

    “Only if you want to lose,” I responded. The smile on his face, followed by him cracking his knuckles and neck, was everything, followed closely by our time on the court playing, and laughing, and being together.

    Standing at the gate, I reminded him of our games the day before, including the game where he beat me 21 to 0. There was a glimpse of energy, and a smile, and I felt lighter.

    The agent finished boarding the other passengers and came to us to escort my son to the plane. I gave my son a hug and a kiss, put on a brave smile as he disappeared down the jetway.

    I stood at the window, watching the pilots finish their preflight checks before the jet bridge was retracted. The airplane pushed back and entered the flow of traffic to taxi to the runway. Once it disappeared from my view, I began my long journey back through the airport, to the car, and finally to the house, which felt emptier without my son.

    It was terribly quiet.

    But as I left later that morning to go to work, I saw the basketball on the floor of the garage and was instantly reconnected with my son through the memory of our games the day before.

    He’s growing up so quickly. Each step he takes towards independence means there will be fewer moments like the ones we’ve shared. Each year, he’ll need me a little less, and that’s how it’s supposed to be.

    But until then, I’ll seize every chance to create more memories, so that even when we’re apart, it feels like we’re still together.

  • More Than Survival

    More Than Survival

    When I was young, I didn’t have a lot of support learning how to manage big emotions. When things got hard, I would go internal, like a turtle pulling itself into its shell. I’d get anxious and scared, pulling my extremities closer to my body to make myself as small as possible until the danger passed.

    That was a survival skill, but while it helped me get through the danger, it didn’t address the fear and anxiety that remained. I never learned to regulate my emotions and nervous system. As a result, I spent much of my life being an anxious, introverted, scared little boy and hiding from the world.

    I developed other skills to compensate. I found the courage to join the Army. After the army, I started a career, got promoted, and led teams. I got married and started a family. That’s when those compensatory skills began to fail, and I reverted to the safety of going internal, which had worked for me. Still, it didn’t work for deepening a relationship or dealing with difficult situations together.

    The stress of starting a family is real, and it was terrifying to bring another life into the world and be responsible for keeping it alive. I knew I wanted to give my son a better childhood and life than I had, which felt like a huge responsibility especially considering I had no reference or idea what that meant. It was easy to do the fun stuff with him, but the stress and anxiety brought some of those survival skills back to the surface which created distance between me and my family. But we managed.

    The bigger test was when we moved to Pennsylvania. We moved across the county into a new city for a new job and, within a few months, my son also began having seizures. Within that first year of moving, we spent nearly six months in the hospital trying to get his seizures under control, dealing with side effects from his medications, behavioral issues, and the fear of losing him, all in a new environment where we had no support.

    Again, those survival skills that I learned as a child came back in full force. I forced my emotions down inside my shell and focused my energy on the logistics and on getting things done, rather than dealing with the fear, anxiety, shame, and despair that were trying to make their presence known.

    That could be what was necessary. I needed to keep my job, maintain our insurance, put food on the table, and create a sense of normalcy in an unstable and unnatural time. While the crisis was happening, I needed that focus and detachment. But afterward, when the danger had subsided and what was left was the rebuilding of our son, that detachment became a divide, a chasm I couldn’t reach across to connect with my family.

    I’ve spent a lot of time since then to cross that divide. Therapy, self-reflection, and the hard work of being present have brought me closer to my son, and I hope they have also set an example for him on how to balance survival with connection. It’s not easy, but it’s worth it because my son deserves more than just survival.

    He deserves me.

  • Alone Together

    I don’t know where you’re going, but do you have room for one more troubled soul?

    That’s a line from the Fall Out Boy song Alone Together. The title itself is an oxymoron. How can someone be both alone and together at the same time?

    There are a lot of ways to interpret it. Some people hear it as being about drugs. Others think it’s about two people in the same physical space, but still feeling isolated and apart.

    That idea feels familiar. During the pandemic, my family and I were together in the same house, but often living separate lives. We ate in different rooms. We passed each other in the hallway with only transactional conversations. We were together, but we were also alone.

    Sometimes, that distance can feel easier. It can be exhausting to be emotionally available all the time, especially when there is no break or separation. But if that becomes the norm, it’s a dangerous road. The road to ruin, as the song puts it, “and we started at the end.”

    There’s another way to look at the phrase, though. You can also be physically alone from the rest of the world, but emotionally together with someone else. That’s how I often feel with my son. We are separate from much of the world—by circumstance, by hospital stays, by the realities of epilepsy—but in that separation, we are together. Us against the world. Not really alone at all.

    That’s the tension at the heart of the song. It’s also the tension I feel as a parent and caregiver. Lonely, but not alone. Together, but sometimes separate. Finding connection even in isolation.

    Let’s be alone together. We can stay young forever. Scream it from the top of your lungs.

  • Neurodefender: Video Games and Epilepsy

    Neurodefender: Video Games and Epilepsy

    My first video game console was an Atari 2600 that my sister and I received for Christmas when I was eight.1 It was magical to toggle the switchbox and have an arcade on my television screen. Within a few months, I had a collection of cartridges. Pitfall, Pac-Man, Donkey Kong. I even had that horrible E.T. game. But Space Invaders was my favorite game, and my mother’s boss and I had a friendly competition every time we visited his family.

    I usually won.

    As I got older, I became very interested in computers. My first computer was a Mattel (yes, that Mattel) Aquarius, one of the shortest-lived computers ever to go to market. It had a Tron game that I played constantly, even though I had never seen the movie. But it was the ability to program on the Aquarius that got me hooked and, for a long time, my world revolved around computers and my gaming followed suit.

    My first online games were on a computer. That was back before there were high-powered consoles connected to the internet. I’m talking the days of dial-up modems. I would spend hours playing an air combat game with a classmate, but I was obsessed with the text-based fantasy role playing game Gemstone on GEnie, an early online service. It was a massively multiplayer online role-playing game (MMORPG) that connected people across the country in a virtual world. Eventually, I moved on to more graphical games like the World of Warcraft, but the ability to connect with other people in these worlds was life-changing and even turned into friendships in the real world. One of my groomsmen at my wedding was someone whom I had originally met in an online game.

    My son developed a love for video games at an early age. We had a Wii and loved to play baseball and, especially, bowling. I have videos of him running circles around the house after getting a strike, a huge smile on his face emitting an excited giggle.

    As he got older, we began to play video games together, especially sport games like hockey. We’d adjust the settings to give him an edge, and I’d occasionally have to pull my goalie and allow him to score to keep the game close, but it was a fun way to spend time together doing something that we both enjoyed.

    Eventually, of course, I stopped pulling my goalie and boosting his settings because he got better. Today, he wins more games than me. The grasshopper has become the teacher. And we’ve expanded to other games. We finished the Halo series, one of my all-time favorites. We played MarioKart every night during the pandemic to get three stars on every course. Today, we play Fortnite and Rocket League together, with an occasional session of Minecraft mixed in.

    But I’m not the only one he plays with. This era of powerful PCs and consoles with fast internet has opened up the world and allowed him to play with his friends. He has a friend in Connecticut who plays a baseball video game with him. And he hops on Fortnite after school to play with a few of his friends. Through them, he’s met other friends and he has a little network of gamers. Especially over the summer, it’s helped him stay connected as many families travel and it’s been harder to connect with summer schedules.

    In this world of gamers streaming on platforms like Twitch, he has decided that it is the career he wants to pursue. Whether or not that is a viable path for him, it has been a great way for him to explore many aspects of a traditional career: schedules, consistency, marketing, and engagement. He learns by watching other streamers and then practices engaging with his audience, describing his actions and thought process as he navigates a challenge. He loves to teach the “noobs”2 how to get started and basic tactics and tips.

    As a technologist and a gamer, it’s been fascinating to see how far gaming technology has come. For my son, it’s become a way to connect, express himself, and find his place in a world that hasn’t always made that easy. Watching him game, teach, laugh, and grow through this medium is beyond anything I could have imagined.

    If you want to see what he’s building—and maybe learn a thing or two yourself—you can check out his Twitch stream here: @neurodefender.

    Game on.

    1. Crazy side note, when the Atari 2600 was introduced, it cost $190, equivalent to paying $990 in 2024! ↩︎
    2. Slang for a newbie—someone who is inexperienced or new to a particular activity, especially in gaming or online communities. ↩︎
  • Together, in His World

    Together, in His World

    I stood behind my son in a deep cave. A torch on the wall behind us was the only light, casting our long shadows down the tunnel ahead.

    “What are we looking for?” I asked.

    “Diamonds,” he said.

    We continued forward, using our pickaxes to clear the stone blocks in our path. The deeper we went, the darker it became. Occasionally, we’d hit pockets of lava or veins of redstone. I mostly followed his lead—he knew where to dig, where to place torches, when to mine, and when to run.

    Then I saw movement ahead. I hung a torch on the wall and, when it ignited, I saw a very large spider walking toward us.

    “I hate spiders,” I sighed.

    My son didn’t hesitate. He didn’t flinch. While I stayed back, cautious and reluctant, he moved forward.

    That’s how it’s always been. In these games, in these worlds, he becomes someone else—bold, decisive, brave. He leads with purpose, unburdened by the hesitation that sometimes follows him in the real world.

    I raised my head to see him at his computer, locked in, defeating the red-eyed monster. With the path clear, I looked back down at my iPad, and we pressed on in our quest.

    It had been a while since we had played in the same physical space. Lately, he’s been focusing on his streaming “career,” diligently trying to build an audience on Twitch. He’ll come home from school, finish his homework and chores, head to his room, and close the door.

    I’ll watch his stream. Sometimes he plays with friends. Sometimes alone. Sometimes we play together—but two floors apart, connected only by FaceTime or in-game audio. It’s something, but it’s not the same.

    Today was different.

    Minecraft is one of the few games where he takes the lead. He’s the expert—he builds the world, sets the rules, and guides the mission. He lights up when he shows me what he’s made—a house with hidden doors, a rollercoaster that goes through a mountain, or a massive Captain America shield reaching impossibly high into the sky.

    In the real world, everything takes extra energy. Every day is a challenge that he doesn’t always show. The constant pressure to keep up, to interpret unwritten rules, to manage the invisible toll of his condition—most people wouldn’t notice it, but it’s there. And it wears on him. But in these digital spaces, he’s free. Confident. In control.

    Sitting beside him, I kept glancing up from my screen. I saw how invested he was in keeping me alive, on task, and included. He was unusually chatty, explaining our next steps. His voice was proud. His posture relaxed. He was happy.

    And I was, too.

    We’ve been in a bit of a rut lately—living in separate spaces, our lives occasionally overlapping. I’ve caught myself worrying that the distance is permanent. That the doors he closes might stay that way. It’s easy to panic when that happens. To think it’ll take something big to bring us back together.

    And maybe that fear comes from knowing what distance can become.

    Because that’s what happened to me. I hid in my room, hands on a keyboard, eyes on a screen, building worlds in code. I created that distance—between me and my parents, who didn’t understand me, and my sister, who didn’t want to be around me. In my room, and in that world, it was easier. I was safe. And no one did anything to change it. So the distance became permanent.

    But today reminded me: sometimes it only takes a moment. A small step into his world. A little curiosity. A shared screen. A diamond hunt.

    Not to fix everything, but to find each other again.