Tag: fatherhood

Rock On

The image above was 10 years in the making.

The photograph on the left was taken in July 2014. We were in Philadelphia ahead of our eventual move from Colorado. My wife and son had a long week of exploring and house hunting, and we thought we’d unwind and play games. About an hour after that picture was taken, we’d be standing in the lobby waiting for a taxi and watching our son have his first seizure.

Over the next 10 years, we’d see our son have countless seizures. We’d have many nights where we thought we would lose him. We would spend months in the hospital saving his life and then years trying to rebuild what was damaged. We would struggle to find his place in the world.

The photograph on the right was taken at Dave & Buster’s a few weeks ago after our son’s last school day before winter break. As I walked around the corner and saw him pick up the guitar, I had the image of my present-day and my son 10 years ago, like two different realities, crashing together in my mind.

While we’ve had struggles and challenges in the last ten years, the significance of that moment was that we’ve also had successes and accomplishments. Our son is 15 now, and we’ve had so many years we weren’t sure we would get. He plays baseball, enjoys gaming and streaming, and has friends. He’s in a school for kids like him, which gives him a place to learn and grow.

When the picture on the left was taken, we didn’t appreciate how little knowledge and control we had over the future. Later that night, any vision we had for the future was shattered. The picture on the right reminded me that we can never predict the future. We can only learn to embrace every moment, victory, and opportunity to pick up the guitar and rock on.

Better Than It Started

The new year is knocking on the door, which means it’s time to reflect on the previous year and look ahead to the next.

It’s interesting to look back at the last 12 months at once. While we were in it, living each of the 366 days this leap year, we were busy transitioning from one moment to the next, moving from calm to crisis to celebration. Each moment seemed fleeting because as soon as it happened, we were forced to let go of it and be present in the next one.

When we pause to reflect and look back, those little moments disappear, and we see only the big ones—the milestones that shaped and defined the year. We extract them as the major plot points necessary to understand how the story of our lives developed.

This year, our story is one of addition. We added two more countries to our travel map. We added a family member as our goddaughter came to live with us, giving my wife and I a pseudo-daughter and my son a pseudo-sibling. The family expansion has opened him up in remarkable ways. Speaking of opening him up, my son added a new device to his collection, having surgery to implant a DBS in the fall.

Our story is also one of resurgence as we started to dig out of our post-pandemic hole. We’re having more family meals together, and although we’re addicted to watching Holey Moley now at dinner, at least we’re doing it together. After too many years away from it, my wife joined a band this year and has been singing regularly. And after a spotty past few years, I’ve been posting regularly on the blog.

I’ve also focused on my other creative pursuits. I took up drawing and have a project in mind for next year. I’ve also continued my French lessons and maintained a 5+ month streak in Duolingo. My son also picked up the language bug and also has an impressive Duolingo streak in Spanish.

This year, I also worked on myself. Since the spring, I’ve worked out nearly every day, including a few hours of tennis per week and walking the dogs almost daily. I also have a healthier diet. As a result, I’ve lost most of my pandemic weight, which was caused by little exercise and little self-control in food choices.

I’ve continued with my inner self, as well. With several significant personal and professional challenges this year, I’ve gained clarity on who I am, what I want, and what I can let go of, which has me feeling better than I did earlier in the year.

Of course, better is subjective. On the inside, clarity in relationships can be better, even if, from the outside, it looks like the parties have moved further apart. It can remove ambiguity, simplify expectations, and provide clear boundaries and expectations, and that is better.

Overall, we’re ending the year better than it started. I think I will sit in this reflection and re-read this chapter of our lives one more time to take it all in. With so many personal, professional, and political variables that will change next year, it’s impossible to predict exactly how the story will unfold. But if this year has taught me anything, it’s that growth comes from embracing the unexpected and finding meaning in the journey. As the new year approaches, I’m carrying forward the lessons, the love, and the momentum we’ve built.

Here’s to another chapter filled with challenges to tackle, milestones to celebrate, and memories to cherish.

Shaped By Our Suffering

When we lived in Colorado, I would see trees on the edge of cliffs as we drove through the mountains. The wind and weather at that elevation could be brutal. But these trees would grow thick roots to ground themselves into the earth, even as their trunk and branches were bent and battered and grew angled towards the sky to withstand the constant pressure from the wind.

I recently came across the phrase “shaped by our suffering,” which speaks to how difficult experiences can shape a person’s character, perspective, or life path. While painful and often unwanted, the idea is that suffering can lead to personal growth, resilience, and a deeper understanding of life.

For as long as my son can remember, he has had challenges. He has had seizures, memory, attention, and learning difficulties. He was isolated even before the pandemic and, even now, is often on the outside of many social situations. He had so many dreams taken away from him before he could try to achieve them.

Through it all, though, his challenges and struggles shaped him into a sweet, empathetic, resilient, and big-hearted person. Those are his roots, which ground him as a person and to this family and keep him from getting blown away by what he endures every day to be in the world.

His struggles have also shaped me, forcing me to reflect on myself, my life, and my choices and develop a greater self-awareness. The months in the hospital while the doctors, nurses, and support staff kept him alive and rebuilt what he had lost changed my view on life, gratitude, and presence. The strength and grace he shows daily in the face of his challenges guide how I think about and approach challenges in my day.

The hardship we endured as a family, which tried to tear us apart, formed deeper, stronger connections between my wife and me and in our family. Today, those roots continue to strengthen, ground us, and make us more resilient against whatever comes our way.

Like the trees I saw in Colorado, we are shaped by the winds of our struggles. The storms we face may bend and scar us, but they also deepen our roots, making us more resilient and grounded in the things that truly matter. My son’s suffering has shaped him into a remarkable person with an incredible capacity for empathy, strength, and love. It’s taught me to live with more gratitude, to be more present, and to face my challenges with the same strength as my son.

The hardships we endure don’t define us, but they shape us—and sometimes, they make us stronger than we ever imagined possible.